Friday, September 3, 2010

Catching Up

I have been chastised for not keeping up with Karla's progress and I repent. I promise to update as soon as I can.

Friday, March 13, 2009

Visiting Karla

Karla's mother was finally able to go see Karla last week. She is in Dallas/FortWorth right now and is able to see Karla on the weekends. She will be staying for 3 weeks. Darlene(Karla's mother) has witnessed Karla having several seizures already(the B.O.P. had stated that Karla was not having seizures). Karla does have to go to the appointed visiting area to visit with her mother and it is very hard on her and exhausting. Darlene has commented that Karla is the only woman from the Carswell FMC that has a visitor.

Karla's radiologist requested that Karla see the Neurologist for her spasms 12 weeks ago, because they were interfering with the radiation treatments. She finally was able to see the Neurologist a week and a half ago. He prescribed a patch for behind her ear as he feels she is having extreme motion sickness. This was a week and a half ago and she still has not received the patch.

Karla was told by the Neurologist that her tumor is aggresive and that the Neurologist was going to request an early compassionate release for her. This is the first time Karla has been told by any medical personel exactly how serious her tumor is. Julie, Karla's sister, had to do the research from the medical information, that was sent to Senator Crapo, to find out what Karla's prognosis was. It was from Julie that Karla originally learned that her tumor was cancerous and aggressive. Karla was informed that the early release would not be for 12 weeks. Karla was scheduled to be released from prison in August because of good behavior. The early release will only cut 3 weeks off of this time. Could you imagine being diagnosed with cancer and not being told any information about what kind it is or how long you are expected to live? Or having to wait 3 1/2 months from your cancer diagnosis to find out how serious it is? We have been told that Carswell provides community standard care. Any medical community that provided care like that would have the pants sued off of them. Do prison inmates deserved to be medically neglected because they committed a crime?

Karla also told us that the water at the Carswell facility smells so strongly of chlorine that it makes them sick to drink it. They were melting the ice out of their ice machine to drink it(the water to the ice machine is filtered). This, however, has broken down and these ill hospitalized ladies have to buy all their drinking water if they want anything to drink that will not make them feel ill.

Sunday, February 22, 2009

A Letter about Karla

The following is part of a letter I sent to our attorney.

I will answer your questions the best I can. You asked when Karla was placed in solitary confinement. On the 14th of Jan, Karla stated (in her journal she sent us)that she was placed in solitary confinement the week before, because of her MRSA. I am guessing that she was placed in solitary either on the 8th or 9th of Jan., because on the 8th in her journal she stated that she was giving samples of her green sputum to the medical staff. I am assuming it would have been shortly after that. In her journal she stated that she received radiation treatment on the following days and she listed the number of treatment it was: 1/5, 1/6,1/7,1/8,1/9,1/12, and 1/14 which she listed as her 10th treatment, 1/23 listed as her 18th treatment, and 1/30 as her 22nd treatment. She specifically said she missed treatment on 1/28 and 1/31. I know there are some treatment numbers missing in the list, but she did not record them in her journal.
Julie spoke with Karla today(the 22nd of Feb.) and she said that she has missed 2 more days of treatment in a row and is having a bad turn due to this. It was requested by her radiologist (Dr. Lynasa) on Jan 18th, that Karla see a neurologist. She has not yet seen a radiologist. She is to see the neurologist to address her nerve pain, dizzy spells and spasms. Karla was prescribed Gabapentin for nerve pain when she was in Arizona, which gave her great relief, but was taken off of this when she arrived at Carswell. Her dizzy spells which trigger her spasms are becoming constant and severe. She has begun biting her tongue during these spasms, which is very troublesome. With these she experiences headaches, burning pain in her head, eyes and chest and arms. Karla was on steroids to help reduce swelling, but they abruptly took her off of it. Dr. Lynasa was very upset when he learned this, as the steroids are very important for Karla and also a person should be weaned off of steroids and never abruptly taken off.
We have requested Karla's medical information from Dr. Lynasa's office (the radiologist), but they would not release any information to us, saying that we would have to go through the prison. The prison of course is giving us the usual song and dance and we have obtained nothing from them. We would like Senator Crapo to request the release of Karla's medical charts on the behalf of us and Karla. Is this something he could do or put pressure on them for? Karla told Julie that she signed a "cop-out" form stating that she wasn't receiving adequate care at the facility and wanted to see an outside doctor. Karla was told by Dr. Lorenzi(her BOP doctor) that assistant warden Stone told Dr. Lorenzi to "take care of it". So to take care of it Dr. Lorenzi yelled at Karla for 15 minutes accusing her of trying to make the Dr. lose her job.
Karla was informed that she would be released in August because of good behavior, but she was also told that she will only be able to leave if she does so by walking out on her own. Karla was told that if radiation doesn't take care of the tumor she would also need Chemo. She was informed by the medical staff at Carswell that there a lot of people ahead of her in line for Chemo and that it would be quite awhile before she gets chemo(if this is community standard care, what's with the long waiting list for Chemo?). Karla was also told that if the radiation doesn't work that she will quickly go backward with out chemo, as the tumor grows and invades the surrounding tissue.

Saturday, February 21, 2009

Another journal from Karla

We received the following journal, kept by Karla, in the mail. We have been told by the BOP that she is not having spasms or seizures. Please note the number of times she talks about having spasms below. We were told by Karla, that the guards do not like taking her to radiation treatment, because they are afraid of her spasms. In the journal she speaks of waiting to see the neurologist. She is still waiting to this date to see the neurologist.

1-5-09 3rd treatment
1-6-09 4th treatment
1-7-09 5th treatment. I saw Dr. Lynasa today. He is submitting some medicine for my spasm or neck, not sure what. I was in so much pain I couldn’t concentrate.
I asked the nurse about not getting my Decatron at 5:00 a.m. She said she gave it to me. Well, by11:00 a.m. my spasm was so bad that my whole body spasmed, not just my left side, but both sides. I told Nurse Downey. Dr. Lorenzy tries to ignore me unless they have to talk to me. I feel like they only do when they have to.
1-8-09 Blood pressure 78/43
1-8-09 6th treatment. Coughed all night. Hacked up green stuff for 3 nights now. I told Nurse Downey that I thought I might be getting pneumonia…hard to breath. I have been giving samples of my hacking up green stuff . Dr. Lorenzi checked my lungs and said that I have to have antibiotics, Zpac. Two days now and no antibiotic, yet, maybe tonight.
1-9-09 7th treatment. I got my antibiotics. Feeling better.
1-10-09 The spasms come on like usual. First, the dizziness real bad. Then the real bad spasms. They started at 5 p.m. It is now 8:30 p.m. and they are still going strong.
Later: Still hurts the left side of my face with burning in the left side of my head, shoulder, hand, arm and back of my neck. Changed medication time on my steroid today. Not wanting to give it to me now, when I should be getting it at 9:30 and 5:00 am.
1-11-09 I spasm all day and stayed dizzy the whole time.
1-12-09 9th treatment. Spasm all day long. Mostly when I eat and cough(when I cough up the green stuff.)
1-13-09 Woke-up, no spasm until 8 a.m. Real bad dizzy and REAL Bad spasm. Took percocet.
1-14-09 Went to treatment today (Wednesday). I saw Dr. Lynasa. He said I needed the Neurologist for my spasms and medication. I told Dr. Lorenzy and she said she talked to Dr. Lynasa, also, today and I should get medication and the doctor of Neurology, YEA! My MRSA(antibiotic resistant staph) that I got last week ended(put) me in isolation. Its so cold in here. The air is always blowing real cold air. They changed my pain med today with out telling me again. I’m in pain now and I found out about it now, NOT RIGHT! The Doctor changed it again with out telling me again.
Later: Its been 1 ½ hours since I asked for medication and they didn’t tell me until I have my last time. She should have told me.
1-17-09 Last week I was taken down to 2 Oxci every 12 hours, pain or not. Same with Dexamiathine. NOT telling me why, just did it. Percocet e very 6 hours. My pain is still intense. I have to lay really still and not move so all day I stay in bed. The 15th they put me into isolation room. They ignore me. I can push the button and they don’t even answer until 15 min. later.
1-18-09 Spasms, maybe 10-15 times a day and all night.
1-19-09 Same as yesterday: bad spasm day and night.
1-20-09 I ask for more triazadone
1-21-09 They didn’t up it yet. Still up at 3:30 a.m. Feeling dizzy. I ask for I.B. profen and mectazine, because I have to wait 6 hours now for percocet. I buzzed at 3:30 p.m. No response. I called again at 4:15. Real bad head ache now and really dizzy. I waited until 5:00 p.m. and buzzed again. They turn my buzzer off. By this time my regular meds come at 6:00 p.m. Now I want my percocet.
1-23-09 18th treatment. I might see the neurologist and oncologist next week. I just told Julie that my Nurse is insensitive about me and my medication. Well, 4:00p.m. was my time to get it. Now, it is almost 6:00 p.m. I have real pain now. I can’t hardly see at times.
1-24-09 I had a spasm just now. It was so bad that my whole body hurts.
9:26 p.m. : I just asked for IB profen. I took my percocet at 4:30 a.m. this morning. The pain that the spasm gave me was so bad that my face went side ways and my side of my heart and left arm hurt and burn. My face stuck like that for a few minutes. It scared me. I did that only once and didn’t last that long. I told Nurse Corbett and she said “Yes, Fuller. There’s nothing I can do.” I said “I just want to tell you so someone knows what’s going on about my condition.”
1-25-09 I was buzzed at 6:00a.m. and asked if I want my melamine for dizziness. I said no because I don’t need it until 8:00-8:30 a.m. So Ms. Price waits for me. Well, Ms. Corbett comes in at 7:00 a.m. I ask at 8:00a.m. if I could get my mescaline. She said let me check if you got it at 6:00a.m. I said No I didn’t . So I wait. She doesn’t call me back. 9:20 I call back again. She said “Miss Fuller, she gave it to you at 6:00 a.m.” I said she didn’t. It doesn’t matter.
1-28-09 No treatment today. I have spasms and dizziness real bad today. When the spasm is done my left side of my tongue was numb, my arm all the way to my leg, my ribs and left side. The spasm hurt real bad. My head and neck burns, left side.
1-29-09 Spasm all morning, long and hard. Instead of breathing in and out once (to deal with the pain) now I have to breath in 3 times and out 3 times. I have the shakes so much that I can’t write.
1-30-09 22nd treatment. I had some spasms and dizzy. But not bad. Maybe 8 spasms and some dizziness. Good day and this weekend coming up I am going outside.
1-31-09 No treatment today. I spasm and dizzy real bad since 10:00 a.m.
2-6-09 Mecklazine(motion sickness meds. Compares to antihistamine) are take as needed and the nurses are so mean. They tell me that when its offered at 5:00a.m. with the rest of my meds, I need to take it. They get really busy in the morning and I may not get it.

Monday, January 19, 2009

Waiting for Visitation

The papers we faxed to the Carswell facility ,concerning Karla, were finally faxed back to us. It took our Attorney contacting them to get them to fax the papers back. We are waiting on paperwork allowing Karla's mother to go visit her. We have been informed that Karla will not be given special visiting privileges and will have to go to the visiting room. If Karla can make it to the visiting room at all, her visits will be very short as she does not have the strength for a long visit. We were informed that since Karla goes out of the prison facility everyday in a car(with assistance, which exhausts her) to her radiation treatment, she does not need special visiting privileges. No one helps Karla with her wheelchair to the elevator , in order to get to the visiting room. A member of our church was to meet her there to give her a blessing, but she was unable to make it to the visitor's room. She was too exhausted.
We were informed that Karla has a staff infection in her lungs and is currently in isolation. She states that "as long as I hold perfectly still and don't move, then I don't hurt. I guess I will lay here and be a zombie".

Wednesday, January 14, 2009

George Airforce Base

After some research we were informed that we had associated the wrong name with Victorville. It is not the Erin Brokovich story, but instead it is the story of the George Airforce base. The George Airforce base is about 22 miles from where the Erin Brokovich story took place. The base was closed in 1992. Jet fuel had been leaking in to the ground and had gone into the water systems making people ill. The military housing is across the road from the prison and is visible from the prison. The story is the same (that of a prison facility using water that is questionable) but the name is different.

Tuesday, January 13, 2009

Lying Words

Following is an excerpt from a letter that was forwarded to us today by our attorney. It was sent from Senator Crapo's office. The Carswell staff say that Karla is faking her seizures and spasms. The poor girl is paralyzed on one side and has an aggressive brain tumor, where would she get the energy to fake a seizure every few minutes? Someone is lying........and it ain't us. It was asked, if we have been able to have access to Karla or the medical staff, now that the medical papers were signed. We are receiving calls from Karla again, but the staff will not talk to us. They do not answer the phone when we call and do not return messages. Also, the medical staff indicate that Karla can communicate clearly. That is an ambiguous statement. Is that using hand gestures and sign language? Karla's mother has a difficult time understanding her when she calls on the phone. Her words are slurred and difficult to understand. I was able to speak to her myself a few days ago. I was able to make out a little more than half of her conversation.


I did have a chance to read the article you sent and found it to be disconcerting (I have forwarded it along to the appropriate staff in our organization). This morning, I received the following from BOP:

“Inmate signed medical consent forms. Family calls frequently.

Inmate Fuller, Karla is housed as an inpatient on the Medical/Surgical floor. She arrived December 9, 2009, (Tuesday) and was screened in by the Mid-Level Provider. She was followed up the next day by the Clinical Director her ordered her medications. A non-formulary request was submitted for Gabapentin (for pain) and she was prescribed this medication for pain until the decision by Central Office in which it was disapproved. She was also prescribed acetaminophen for pain. Once her Gabapentin was discontinued she was prescribed Oxycodone for pain. She has been evaluated by physical therapy and issued a permanent wheelchair. She is able to get around on her own on the floor in her wheelchair. She goes for radiation daily to an outside cancer center. She is able to get into a car with assistance and transported to the outside facility for radiation. Staff spoke to her on January 8, 2009, and she was able to communicate clearly. She did not display any sort of seizures or spasms during this encounter. Her physician and nurses taking care of her states she fakes spasms and seizures. She began radiation on January 2, 2009, and receives it daily for her brain stem anaplastic astrocytoma. At this time her prognosis is unknown, therefore she does not meet the criteria for a compassionate release. After her radiation treatment is complete and a followup MRI is performed, then her request for a compassionate release can be reconsidered.”

Now that the medical consent forms have been signed, have you had access to Karla and/or medical staff to ascertain her condition?